Carol - I talked to my people at home & they said it was RAINING??? They said it wasn't much more than a light sprinkle but it got the pavement wet. Wow! Rain on the first of August and I missed it.
Yeah, isn't it weird, all of July and no rain, driest July since 2003 and now here is the rain. Wonder if this is a omen of things to be in Aug. I sure hope not.
Auntie Em was semi-awake when I got here but she was glad to see me. I had the feeling she didn't recognize me at first but then she got after me because I hadn't been there. She didn't know how long I had been missing but she knew I had been gone. And, she knew that she had asked the attendants repeatedly where I was and for them to go get me. I told her I had to go take care of the kitties & she let it go. She told me she was glad that I made it back. Her attendants said she hadn't been sleeping well but right now she is sleeping like a baby.
She is having real problems with speech and vocalizing her thoughts.... much more so than what I saw last weekend. After seeing her, I understand why Izzy was concerned. I think those tumors are having a field day in her brain and there's not much time left. She has no appetite and is having problems swallowing but she was adamant that she does not want to be put on tubes. I don't know if the swallowing problem is caused by the meds or by the growths. So at this point, there's really not much we can do except keep her as comfortable as possible. This is an exercise in helplessness.
Today has been a day of mostly watching Auntie Em sleep. She woke up several times & recognized me but just went back to sleep again after a short period. It's good that she recognizes me I guess.
They've had her connected to an IV for liquids most of the day but she has not eaten anything. They mostly are using it for administering her meds. I offered her some Jello during one of her awake periods but she didn't want anything. Unlike her though, I need to take a break and get something in my tummy 'cuz I am starved. I had an airport muffin this morning but I'm now running on empty. I guess I just need to sneak out & get something.
The body knows, and it's best to respect her wishes and not insert feeding tubes (to what end??). It's what I would want and I think you would too if there is no hope of recovery.
Carol - It's stage 4 Astrocytoma! The only treatment option is radiation and chemo.... and at her age and weakened condition, that isn't even on the table. The tumors are in an area where three lobes of her brain come together. She and I went over all the final life scenarios while she was healthy and she was emphatic. No heroics or prolonging the inevitable and no artificial life support. I have given the orders to implement what she wanted and I will stick to it... no matter what. At least she's not in pain. But, it's not easy to just sit here and do nothing... even though there's nothing that can be done. She has slept most of the day but has been awake several times for up to an hour at a time.
Her friend Izzy was here for a long time today sitting with her. We chatted some & she told me some great tales of things she and Auntie Em did together. She is a GREAT lady.
Mr Ed, I realized that there was nothing that could be done when I mentioned the feeding tubes. Maybe you misunderstood but I was just reiterating what she had said she wanted...no useless efforts to prolong things.
Carol - I am over-reacting to even tying my shoelaces. I didn't mean to be so harsh in my wording. I'm just FRUSTRATED that I CAN'T FIX IT! The medical staff has their orders and it would take a lot more than me "begging them" to change that now. Anyway, I'm not going to change them. Sure it hurts but the results are what she wants. She was afraid I would weaken at that final door but I promised her that wouldn't happen.
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11 comments:
Have a safe trip
THIT!! 'Nuff said!
Keep us informed and keep your chin up....Auntie Em needs you.
Carol - I talked to my people at home & they said it was RAINING??? They said it wasn't much more than a light sprinkle but it got the pavement wet. Wow! Rain on the first of August and I missed it.
Yeah, isn't it weird, all of July and no rain, driest July since 2003 and now here is the rain. Wonder if this is a omen of things to be in Aug. I sure hope not.
It has stopped for now but the pavement IS WET.
Auntie Em was semi-awake when I got here but she was glad to see me. I had the feeling she didn't recognize me at first but then she got after me because I hadn't been there. She didn't know how long I had been missing but she knew I had been gone. And, she knew that she had asked the attendants repeatedly where I was and for them to go get me. I told her I had to go take care of the kitties & she let it go. She told me she was glad that I made it back. Her attendants said she hadn't been sleeping well but right now she is sleeping like a baby.
She is having real problems with speech and vocalizing her thoughts.... much more so than what I saw last weekend. After seeing her, I understand why Izzy was concerned. I think those tumors are having a field day in her brain and there's not much time left. She has no appetite and is having problems swallowing but she was adamant that she does not want to be put on tubes. I don't know if the swallowing problem is caused by the meds or by the growths. So at this point, there's really not much we can do except keep her as comfortable as possible. This is an exercise in helplessness.
Today has been a day of mostly watching Auntie Em sleep. She woke up several times & recognized me but just went back to sleep again after a short period. It's good that she recognizes me I guess.
They've had her connected to an IV for liquids most of the day but she has not eaten anything. They mostly are using it for administering her meds. I offered her some Jello during one of her awake periods but she didn't want anything. Unlike her though, I need to take a break and get something in my tummy 'cuz I am starved. I had an airport muffin this morning but I'm now running on empty. I guess I just need to sneak out & get something.
The body knows, and it's best to respect her wishes and not insert feeding tubes (to what end??). It's what I would want and I think you would too if there is no hope of recovery.
Carol - It's stage 4 Astrocytoma! The only treatment option is radiation and chemo.... and at her age and weakened condition, that isn't even on the table. The tumors are in an area where three lobes of her brain come together. She and I went over all the final life scenarios while she was healthy and she was emphatic. No heroics or prolonging the inevitable and no artificial life support. I have given the orders to implement what she wanted and I will stick to it... no matter what. At least she's not in pain. But, it's not easy to just sit here and do nothing... even though there's nothing that can be done. She has slept most of the day but has been awake several times for up to an hour at a time.
Her friend Izzy was here for a long time today sitting with her. We chatted some & she told me some great tales of things she and Auntie Em did together. She is a GREAT lady.
Mr Ed, I realized that there was nothing that could be done when I mentioned the feeding tubes. Maybe you misunderstood but I was just reiterating what she had said she wanted...no useless efforts to prolong things.
Carol - I am over-reacting to even tying my shoelaces. I didn't mean to be so harsh in my wording. I'm just FRUSTRATED that I CAN'T FIX IT! The medical staff has their orders and it would take a lot more than me "begging them" to change that now. Anyway, I'm not going to change them. Sure it hurts but the results are what she wants. She was afraid I would weaken at that final door but I promised her that wouldn't happen.
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